Last Updated：2022/12/24
They asked respondents who they thought owned the samples involved in these projects, with 44% stating the institution, 26% the donor, and 23% the researcher. 58% preferred deidentification to anonymization, and 53% thought donors had a continuing right to make decisions regarding the use of their samples. 72% of Caulfield et al.’s respondents preferred that participants have the right to withdraw at any time.
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They
asked
respondents
who
they
thought
owned
the
samples
involved
in
these
projects,
with
44%
stating
the
institution,
26%
the
donor,
and
23%
the
researcher.
58%
preferred
deidentification
to
anonymization,
and
53%
thought
donors
had
a
continuing
right
to
make
decisions
regarding
the
use
of
their
samples.
72%
of
Caulfield
et
al.’s
respondents
preferred
that
participants
have
the
right
to
withdraw
at
any
time.
